Hello I’m Mervyn (Merv). I’m Lisa’s dad.
The name Red Wellies originated from when my precious daughter was a little girl and owned a pair of Red Wellies. Of course, like any child she would enjoy jumping in puddles whilst wearing her wellies and wore them to help her daddy in the garden. However, this was not her only use for them; she would also wear them to lie on the floor, when not in good humour, and angrily, kick the cooker. The name stuck forever. Right up until the time Lisa, our first born child passed away on October 13th 2011, I still referred to her as “my little RED WELLIES girl” and expect I always will. We will forever remember her and continue to raise funds in her memory to overcome this cruel disease that our Lisa suffered and bravely fought.
Hi, I am Lisa’s mum, Rosalie.
When Lisa was first diagnosed with GBM I was devastated, but my Lisa just took it in her stride and said “I’m going to live life to the full”. All through her treatment of chemo and radiotherapy and when she lost her hair she never complained. In July 2011 Lisa was diagnosed with a second tumour, I cannot explain the feeling of knowing there was nothing I could do to save her. This is why we set up RED WELLIES in Lisa’s name to raise money and at the same time, awareness of this terrible illness.
GBM only receives 0.7% of all charity funding and medical professionals believe that at this rate it will be, at least, another ten years before enough funding is available to determine the cause of GBM. I would like to think, as a mother, that no other parent will have to experience the same pain that I feel at losing my child.
Hi everyone, I am Lisa’s daughter Shannen.
In August 2010, my mum was diagnosed with brain cancer, a grade 4 GBM tumour. A second tumour was discovered in July 2011 while my mum was having a routine MRI. The doctors later informed us that this second tumour was inoperable…this devastating news came on my 18th birthday. Mum didn’t dwell on the bad news though, she knew I’d been excited for my 18th birthday since I was little and gave me the best day and the best party I could ever have hoped for. I can’t even begin to describe the pain I feel now that she’s not here.
We had so many plans for the future that we will never get to do. I'm expecting my first baby and she won't be here to meet him, which is very hard to deal with. Mum will never get to hold her first granchild and she will never be able to help me get ready for my wedding. However, if this charity can stop another child having to live without their mum I will be pleased. Ever since I was a little girl, I cherished my mum, as I had an awful thought that I wouldn’t have her for long. Although I still don’t feel I did enough to prove to her how I truly felt, this charity is my way of showing her.
When she first got ill I didn’t connect a brain tumour with cancer, but as we got further into her illness I began to learn more and more about GBM and sadly I discovered that there is no cure. I also know that research funding for GBM is low. This is why I feel it’s important for us to raise awareness. Through Red Wellies I feel, if we can at least save one life, we will have honoured my Mumma and it will perhaps be the only way, if we can find what causes GBM, that I can ever begin to accept her passing. It’s hard not to think that “if in the last forty years more funds had been raised for research then it’s possible that my mum could still be here”. However, I hope all our hard work will result in no one else having this to wonder about their loved one.
Hi, I'm Zach, Lisa’s son and secretary of Red Wellies.
After watching my Mum courageously fight a losing battle against GBM, while all of the time trying to raise money for research into this deadly form of brain cancer, I knew I wanted to continue her hard work. 3 days after Mum had passed away, I received an email from the organiser of the Middleton Church Christmas tree festival, Mum had been to each Christmas tree festival in the previous years, and donated to each and every cause that had a tree, even before she had GBM. At the previous year’s event, after just being diagnosed with GBM, Mum expressed a wish to decorate a tree at the event. After informing them that we had lost our Mum, we asked if we could still to do the tree in Mums honour.
A small group of the soon to be founding trustees got together and dressed a tree in the church with Mum’s very own Christmas tree decorations, with the proceeds going towards GBM, just as Mum had wished.
After this, the charity was formed and I was so pleased that I could help to continue the work she had started and to do it in my own Mum’s name. We continue to hold events in Mum’s honour and to raise money to find a cure for this dreadful disease.
Hi, I am Damien, Lisa’s brother. Like all of Lisa’s family and friends I was devastated to learn of my sister’s diagnosis. The thought of what she was going through and the fact that she knew what was going to happen to her was too much to bear. But like the true fighter she was Lisa refused to let it get her down. She lived the rest of her life to the full. She was an inspiration to us all and this spirit is what lead to the determination to start Red Wellies and raise funds for brain tumour research in her memory. Being a Trustee of this worthwhile charity is an honour and together with your support and the same courage Lisa displayed we will beat this terrible disease.
Hi, I'm Mike. I was a reporter and senior writer on the Lynn News, bi-weekly newspaper at King's Lynn, for more than 42 years before taking voluntary redundancy in 2013 after being diagnosed with rectal cancer. I am now semi-retired for health reasons but still doing some freelance writing work.
It was through my work on the Lynn News that I first came into contact with Lisa Wiles. After learning about her fight against this deadly brain tumour,I went to see Lisa at her home in Blackborough End and was amazed by her courage and determination to carry on living life to the full despite her prognosis.
Indeed, Lisa was thinking of others more than herself and expressed her determination to do fundraising towards further research into glioblastoma multiforme, as she knew just how poorly funded this vital and essential work was and did not want others to go through what she and her family were experiencing.
As well as the initial story about Lisa's battle against cancer, I followed up with further reports on her and her family's fundraising activities and after she sadly lost her brave fight in October 2011, her father, Merv, asked if I would like to join the Red Wellies trustees. I accepted because I could see how dedicated they all were to carrying on Lisa's good work towards helping research and wish to help them achieve those aims.
Hi, I’m Lisa’s auntie, Trisha.
I was devastated when I received the news that Lisa had been diagnosed with GBM. Eleven months later things became even worse when the doctors found a second tumour on the other side of her brain. As Lisa was so brave through it all, we would like to help others by raising money in Lisa’s memory. We hope one day we can find a cure.
Hayley is no longer a trustee as she moved to Florida in 2013, however, it was her idea and hard work that started Red Wellies...
Hi, I’m Hayley, Lisa’s sister. When Lisa was first diagnosed with GBM I literally trawled the internet looking for a cure. Page after page, I read every piece of information. It soon, however, became apparent that no matter how long I searched there was nothing out there that could save her. I didn’t want to believe this and was in communication with doctors in France and Canada; I
had also been in contact with a pharmaceutical company regarding cannabinoids (buds of the Cannabis plant), to name a few things.
My point is, if I had been told that I needed to extract the tongue of a toad and add it to beetle urine I would have done it…perhaps sceptically, but I would have concocted the ingredients with vigour, if there was the slightest possibility of prolonging her life (although, I believe my sister would have had something to say about the urine part). The desperation is such, because the medical world has no answers, thus opening the way for immoral con men to advertise miracle cures via the internet. That there is an opportunity for villains to tout their fake medicines for GBM just goes to show how GBM sufferers are greatly in need of new treatments, instead the sufferer grasps at straws in desperation to survive.
We all have an overwhelming need to protect our loved ones and to make things better, but when we are faced with such hopelessness and woefully unfavourable odds it is heart breaking. So, by being a part of RED WELLIES I hope to contribute to the funding of treatment/eventual cure for this devastating disease, which at present we are, in our anguish, resorted to searching fruitlessly for an answer in sometimes the most dubious places. http://noggins-blog-gbm.blogspot.com/